Saturday, April 28, 2018

Using my artwork to support education and awareness

Art For Epilepsy 

Art 4 Epilepsy Action during the month of May opens for bids tomorrow.  Emerging and established artists from across Australia have donate artwork to raise funds for Epilepsy Action Australia. To view the artworks click on the website and follow the links.

Epilepsy Action Australia supports people with epilepsy and their families across Australia together with education and awareness programs.  I have donated this piece to support their on going work.

Despite being the world most common neurological disorder the are many misconceptions surrounding the disorder.  Epilepsy Action provides education to organizations, workplace and schools to dispel the myths as well as specific seizure first-aid. 

There are over 40 different types of epilepsy with gal mal or fitting being the most widely known.  Anyone can have a seizure during their life time.  This is not always a result of epilepsy.  Seizures can be associated with illness or brain trauma or point to a more serious condition such as brain tumor. It can also accompany other disorders and disabilities, such as cerebral palsy. 

'I kinda think it neat I have epilepsy as it proof I have a brain and it is functioning.   I often wonder about other members of the general public.

The most famous person who suffered from epilepsy is of course Julia Ceasure, from with the name 'seziure' is deviled.

I have experienced seizures in different forms for over 20 years. Abnormal seizure activity can be picked up on a EEG and in 70 % percent of cases be controlled by medication.  Other treatment such as surgery have been developed. I however have a normal  EEG and my seizures have never been fully controlled.  For many years my seizures were put down to stress. 

While stress definitely contributes to my seizures, I have a tumor in my frontal lobe, and last year it was finally confirmed as the cause.  My epilepsy is a result of 'Alice in Wonderland Syndrome' and seizures are just one of the troubling symptoms.  My seizures can cause dehydration, affect my heart rate and temporary paralysis.  Fatigue make these symptoms more visable.

The frequency of my seizures mean I am unemployable and I find epilepsy is more disabling than the cp which everyone can see and assumes affects my intellect.  Despite the many challengers life has put in my path, I enjoy a full and rewarding life as an artist and disability advocate.

Would you know what to do if someone had a seizure?

In Australia the number to call is 000

If the seizure last more than five minutes
Is followed by another seizure
Occurs in water or while eating
The person is also a diabetic 
Or not a known epileptic

Call 000

Do not restrain them or put anything in the mouth as this may cause injury.

If you would like more information
visit the Epilepsy Action Australia Website.

 Most people with epilepsy live normal lives.
'I may have epilepsy but epilepsy does not have me!' 

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