ndis & transport

When it comes to people living with disabilities and the ndis there are numerous misconception's. Access to affordable transport for people with disabilities is the biggest barrier to community participation for those who cannot access public transport on their own or live in areas that are poorly serviced by public transport.

Here's a few facts:

# Myth if you can walk you can catch public transport independently or with a companion.

Fact 1 # there are many reasons why a person may not be able to use public transport even accompanied. They are on the autism spectrum, they have behavioural or mental health issues;  they have fatigue issues related to their disability, the area in which they live is poorly serviced by public transport or transport does not get them to the required destination.

# Myth - People who are supported by the ndis receive a mobility allowance that pays for their transport costs,

Fact # 2 - ndis participants only receive a mobility allowance if they are working, studying, volunteering or doing life skills training.  The amount they receive is determined by the hours per week they engage in the community and the highest level they receive is $132 per fortnight.  This would not cover someone working full time.  The allowance is design to be only an incentive to participate, actually locks people out of the community and leads to greater isolation. 

# Myth participants travel in transport provided by their service providers for free.  

Fact # Service providers charge for transport either to the ndis or the client directly.  The participants can not charge transport to the ndis if they receive a mobility allowance. In most cases participants pay 78 cents per km to be transported to and from their daily activities. 

# Myth Service providers transport every participant they support.

Fact #  - there are providers who don't provide transport and participants need to access a transport service or taxi to access activities offered  by service providers.

Myth # - TTS allows the participants to pay half fare. 

Fact #   The half fare only applies to the first $50 any travel over that amount is at normal price.  It costs more than $50 from North Ipswich to Springfield Orion. 

Fact #   The availability of affordable transport impacts on the choices the ndis participants make. 

Transport and the communication on true costs to participants has failed.  When I was mentoring artists with disabilities their transports costs were higher than the art classes I booked them in for.  I often travel to them  by cab although I was ineligible for a mobility allowance at the time.   I am sure you can do the maths on how far $132 got me. 

Current subsidies do nothing to encourage people to participate in the community.  They remain a deterrent to full participation in the community, even when those activities are offered by providers.  This does nothing to assist the participant to live a life of their peers.  Which was the original intention of the ndis. 

Assistance with transport costs for those who can only travel by taxi needs to be fully funded by the ndis.

Every Australian Counts and the ndis

The National Disability Insurance Scheme is set to be fully rolled out by the end of the year.  This scheme was designed to address some of the many disparities between people with disabilities and their peers. Throughout the history of Australia as a minority group traditionally people with disabilities have had no voice in our democratic system.  This has lead to wide spread abuse and no access to the legal system when their rights are undermined. 

The path to people with disabilities finding a collective voice was the Every Australian Counts campaign, this is where Australians with disabilities, their family members, caregivers, guardians and community supporters lobbied the governments for the right to have an active role in the democratic system.  From this two things gave people with disabilities a greater voice; 1) A royal commission into their care and 2) the ndis we have today.

For the first time people with disabilities were able to tell their stories and were believed.  Australians potentially could take their abuses to court.  It was recognised, that this alone left them dis-empowered and still unprotected by the law and society as a whole.  This was only part of the formula to giving people with disabilities a say in what shaped our nation.  Disability on its own did not disqualify people from taking part in the democratic process and the Every Australian Counts Campaign highlighted this. 

What really stopped these Australians was access to services and amenities that were open to other Australians.  Things like education, job skills, training, employment, the arts, transport, sports and recreation.   Not only did individuals face access barriers in the community, but their family members too.  Often parents needed to forgo income to stay at home and care for their child with disabilities, in the same way children whose parents became disabled lost their childhood and access to education to care for their parents. 

Those living disabilities (the persons with disabilities and family members) were disadvantaged in terms of education, employment, access to the legal system and economically. However all the general public chose to see was the drain on the public purse, not the true causes for their inability to participate in economic growth of this country.  Discrimination was often unseen and occurred because the complexities of the issues lead to people with disabilities living on the outer of our communities. 

The nature of disability itself in not well understood.  A wheelchair is currently the international symbol of disability, in reality the majority of people with impairments do not use a wheelchair. Many people have disabilities that are invisible, yet they still need support or assistance to live their daily lives. Impairments leading to disability can be physical, neurological,  intellectual, sensory, social, psychological, behavioural or a mixture of two or more of these impairments. 

I was born with cerebral palsy which is primarily a physical disability that is a result of a brain injury occurring prior to birth or in the early childhood years. This means every person with CP will have a physical impairment. However depending on where the damage occurs in the brain, a person may have a neurological, behavioural, sensory or intellectual disability.  CP is just one example of disability and yet society wants to put all people with disability into one basket.  

Disability occurs as a result of the way our society is structured - not the 

impairments themselves.

Disability occurs as a result of the way our society is structured.  In other words, the complex way of living denies people with impairments, access to the community in the same way as other Australians. Resulting in a limited experience of life both for people with impairments and their family members.  

An individual may been born with impairment(s) or they many acquire an impairment at anytime.  By the time an individual reaches the age of 80, 90% of people will have some type of impairment that limits their ability to interact in the community. Disability is something that will touch all our lives, in some way, even if we do not acquire a disability ourselves.  Making it an issue for Every Australian.

The ndis was developed for every Australian

All Australians are only one illness or accident away from having a significant impairment that alters the way they are able to access society. 

The ndis was originally to address these access barriers both at an individual or family level and at a community level. In the same way a powered wheelchair enables me to access my local community independently, for someone with an intellectual impairment a life skills course may enable them to be more independent.  Or assistance for a school aged child with complex disabilities to get ready for school in the morning, may allow both parents to work full time.  Until now a child with an impairment could limit family's lifestyles in significant ways. 

The primary objectives of support(s) is to allow a participant in the ndis to be as independent as possible. The ndis looks at the life span needs of an individual and asks what investments can be made now so participants can have a better quality of life into the future.  It looks at potential access issues before they occur. 

ndis is assistance for people with disabilities to engaged in their local communities.

Most people with disabilities are able to work when given the correct support and training, in the main it will not be full time.  I am self-employed and run my own business, I would otherwise be unemployable due to epilepsy. Most people who will be supported by the ndis desire to engage in the life of the community. This is one of the many ways we wanted to be included in everyday life. There are some participants who are profoundly impaired or have a disability that will result in premature death.  There are a small percentage of people who will require 'traditional disability care' under the ndis.

The ndis moves away from the traditional medical care model to a model where individuals and family members are fully participating in the planning of their supports and participating with that assistance to engage in the community.  Instead of meeting the immediate needs of participants, the ndis seeks to support individuals to reach the goals, both short term and long term, as well as enabling them to build a lifestyle of their choice. 

The ndis promotes independence rather that depends on a life time of 'care'.  It will achieve this through early intervention programs; give access to therapy, equipment and environmental modifications to all participants not just those on lower incomes.  This means no one should  be financially disadvantaged due to meeting access requirements of disability.  

However the ndis has failed to address the costs of accessible transport and affordable housing that meets the individual needs of living with disability.  Six thousand young Australians are still living in aged care homes and many in group homes where they're unable to choose their own house mates.

While I was running a professional development arts program for visual artists living with disability, the number one access issue was the cost of transport.  Many people can not access the public transport system due to disability or their disability combined with where they live.  Many of my artists received a mobility allowance and were eligible for the TSS.  Even then they couldn't afford the transport costs of getting to their classes or mentor sessions.  In many cases the transport cost of getting to the class was significantly higher than the class itself.  

The Queensland Government is considering removing access to the Transport Subsidy Scheme to ndis participants.  Many participants are still isolated due to transport costs,  Transport services for those with disabilities are now unsubsidised, putting them beyond participants. Failing to provide an affordable transport for people living with disabilities has left participants without a way to access their community activities. 

Accessing the ndis itself has been plagued with problems.  The website itself is inaccessible, the starting place for everyone wanting to access the ndis.  The entire scheme was based on the Centrelink model a system riddled with access issues for us all.  While such access issues continues to remain unaddressed the government does not consider people with disabilities as equals.     
        
Both sides of the government have failed to secure funding for the ndis into the future.  Due to the many difficulties in navigating the ndis millions of dollars have been unspent.  Instead of using this money to address the issues and ensure every person has equal opportunity to participate in the Australian way of life.  The government have diverted it to other areas allowing them to bring the budget back to surplus. 

Nothing has been done to woe voters living with disabilities, our votes and our voices are still of little significance.  Addressing our needs and our rights still is very low on the national agenda.  The future of the ndis needs to be put on the 2019 election agenda.  The current surplus needs to be reinvested to improving the ndis.  Anything less says to people living with disability that they don't count. 

Those of us with disabilities labour under a constant battle to be heard.  We ask you to email your electorate candidates and ask what their party intends to do about fixing the problems of the ndis. People with disabilities do count and we should be accommodated by the Government.

Ipswich Art Community - What really hurts

It's about the spirit of the awards.  The Ipswich City Council stepped in last year to save the Art Awards. Until then the Art Awards were driven by Ipswich Artists, groups and the business community. Members of the community gave their time to organise and run this event in order to encourage other artists in the region. My own growth as an artist is due in part to Wayne McDonald and Glen Smith who kept encouraging me to enter each year because they saw my potential. 

My perseverance through their encouragement paid off when I received a Highly Commended last year. This is the spirit of the awards and now I encourage other artists to have a go.  However having a go this year is not the same.  The cost of entering is not rewarded with a chance to exhibit and sell your work.  The realty is the Ipswich Council have contributed a small amount to the cost of the awards.  The rest was paid in artists fees @ $30 per entry and the $25 to attending the Awards night.  

This year there are only first prizes in each category and no highly commended on offer to provide encouragement.  Previously other awards have been offered to invest in up and coming artists such as an emerging artist award and a printmaking residency.  Works were also acquired by the Ipswich Gallery and local businesses.  

Effectively the Ipswich arts community are funding these awards not the Council.  Resulting in the arts community hurting.   There was no indication that all artworks would not be hung and there is certainly no investment in further artistic careers being made. This is what really hurts.

The withdrawal of sponsorship's last year was due in part to the Ipswich City's Councils actions and lost of trust in the community.  Despite the event being run solely by community members each donating hundreds of hours of their time to make the event successful.  This year is no exception Arts Connect are again manning the exhibition for the 3 days it is open to the public.The arts community as a whole, not just visual artists, but performers, musicians and poets heavily support other events during the festival. 

What hurts the most is much of this information about not all working being hung was not divulged before entering art and buying opening night tickets. It was only upon delivery or art this information was given on a slip of paper.  The lack of transparency from Ipswich City Council is still evident.  It feels personal and like a kick in the guts.  The actions of the Council devalues what artists give to the community.  

This is not what the awards  were about.  We are discouraged as community but united in our resolve. We will celebrate our own achievements in our own way on the 26th April at Salon des Refused at the Arts Alive Gallery, we ask that the Ipswich community come and support local artists over the weekend of 26 to 28th April by purchasing work. 

    

Engaging Suppport Workers under the ndis

 Every family and participant has the right to decide . . . 

 who comes into their home and who they 

trust to support them in the community.

So your new to receiving supports for your disability or a family member. You've just recieved your ndis plan and you have x dollars to spend on direct support. Where do you start?

Choose the types of direct supports you want?

• Respite support
• Day respite support
• Day activities support
• Social support in a group
• Social support one-on-one
• Community Access Support
• In-home Support
• Job coaching/Support
• Personal Care
• Transport

If your new to being able to access supports chances are you may not know what all the different types of support are and there are supports not listed here.  In your planning meeting you would of set your goals. This is the first clue to the type of support you might like to access. Let's look at these:-

1. Respite Support: This gives a full-time carer a break from providing care for someone. This support may occur in the home allowing the care givers some time out. In a day activity centre where the person with a disability does a number of activities in a group setting or a period where the person has a home away from home, the family might take a holiday during this time.
2. Respite Care Settings/Day Centre or Group Based Activities: These are where a number of people with disabilities are supported to do things together. Things like shopping, sports, physical activities, drama, arts & crafts, life skills and social activities.
3. In-home Supports: This might include assistance with daily living tasks such as showering and dressing, meal preparation, light house work, gardening or just things you enjoy doing at home. 
4. Community Access Support: This is where an individual support worker supports one individual to do things in their local community.  Things such as getting to and from school and work, attending medical appointments, attending mainstream groups such as guides, art and crafts groups, playing sports, attending a gym, swimming, doing things of interest to you, shopping, going to have a hair cut, going to the pub, attending a wedding, visiting a theme park or national park.  Basically this includes any activity your peers would enjoy.
5. Social Support:  This may occur individually or in a group - the choice is yours.  Some participants may use their social support to improve their socal skills or make new friends.  Some might choose to attend a social activity in a group organised by a disability support agency or they might have one on one support to go on a day trip or to the markets.  A popular type of social support activity is to attend a movie or go to a football game.  Social support includes any type of activity people do for enjoyment.
6. Job Support: This is support to find a job, to get to and from work, do some work experience, or assistance looking for work.

Hopefully this gives you some ideas of the types of activities you might like support to do.  Your choice of activities will come from your ndis plan goals, such as assistance to get your child to and from school. This may involve having assistance with getting your child dressed, feeding your child breakfast and putting them on the school bus or in a taxi.

At the time of your meeting with the planner you are asked how you want your plan to be managed.  Setting up the adminstration of your plan is the first step, as you can not access a service for support until you know what you ndis budget looks like.

The three basic choices were:- 

• ndis plan managed
• Host fund provider
• Self-managed

This choice will influnece how you engage your support workers.  Within these three choices their are a number of variations and each variation will enable you to engage your support workers in different ways. Regardless of how your plan is administrated every participant can engage support workers through a Disability Support Provider. 

However if your plan is ndis managed, then the only way you can access support workers is through an ndis registered plan provider. Traditionally this means that you could not self-direct and engage your own staff. However this is no longer true. There are now ndis disability support providers who assist you to directly engage workers.  See services like Mable and Hire Up. 

If you engage a third party to manage your package you have a choice on whether that provider supplies direct support staff or a different provider.  I have previously shared the pro and cons of accessing one provider to provide all your support needs (Choosing a support service) - You may find you are able to self-direct or partially self-direct your support staff using a host funds provider. 

For those who are able to self-manage their plan there is more flexibility. You are not limited to a ndis provider for your support service, you may like to access a cleaning service to clean the house, a home maintenance service and a food preparation company to cook.  Some people like the simplicity of having workers who can support them to do all tasks, while other engage workers that are skilled in specific areas.  It very much depends on your support needs and lifestyle. 

I personally work best with people who have a creative interest. They do not need to be artists like myself, they might show their creativity in other ways such as gardening. I find workers who do not share a creative interest do not enjoy working with me as much as workers who are creative.

So now you need to start thinking about the type of person who you would enjoy working with.  If you are wanting a support worker to support you to go swimming, you don't want a coach potato or someone who can't swim.  The coach poato might be great to go to the movies or the pub or even to do arts and craft. This is where deciding if you want a support worker for a specfic task or you want general workers to support you in a numbers of ways.

Regardless of how you access support from a support worker or a carer you will find that some support workers are selective with the type of supports they provide. (This occurs both with disability support organisations and workers you may seek to directly engage or employ). For example some support staff will not assist with personal care or transport you in their car. So you need to be very specific about the type of support you're seeking and the tasks required.  Some people will agree to anything, hoping to persuade you to do what they want to do later.

If you are self-directing your own supports you will need to develop job description(s). Some people like their workers to do all the roles or tasks they require, while other participants seek support workers to support with a particular part of their plan.

I also partially self-manage my own plan.  I engage support workers through an online platform that links participants and support workers, then they negotiate an arrangement between themselves. The workers are officially employed by this ndis registered organisation, so no matter how your plan is managed you change choose your own support team and effectively be self-directing or directing for a family member.

I have one key worker who assist me with self managing a team and looks after the roster, another member of the team looks after all the team training and updating my support plan and induction guide.  My key worker also assists me in recruiting new team members and management of all my ndis supports.  Although I can do this phone calls are diffcult due to my speech impairment.  It is quicker and easier to have her negotiate all my service agreements for me to approve and sign.

Other participants have support workers who just assist them in the home and then a team of workers who assist them to do different activities in the community.  You need to consider your lifestyle and your needs when you select how to structure your support team.  You can also ask for assistance to organise your supports in your plan.

At this stage you need to begin to develop a detailed support plan that spells out all your support needs, your expectations of support workers, an explanation of all tasks required, including descriptions and any specialised plans the support workers are required to follow, such as your personal care routine, medical emergency response plans and behaviour management plans.  If you have a supports coordinator or a coordinator through the disability support agency you have a service agreement with they will either write your support plan or work with you to write the plan.

For those who are self-directing through an agency, you will be able to access their templates to write your support plan.   These support plans form part of the service agreement or employment agreement you and the other party sign.  These are legally binding documents that all workers must follow.  They are not negotiable by individual workers, they are not guidelines and they certainly are not suggestions of how a worker provides supports.  If the unfortunate happens and an incident arises, if plans have not been followed workers may find the cannot claim work cover or sue in event of injury.

On that note if you are directly employing your own support team as an employer you are responsible to insure your own staff and ensure all entitlements are paid.  You can check these with employers services and the award.  The other way to directly engage workers is to pay or contract support workers who are self-employed and are responsible for their own insurances and taxation requirements.

Just an overview of how support workers can be engaged or employed:-

• Employed by a disability support organsiation that is ndis registered. A list of these are on the ndis website or you can ask your Local Area Coordinator to assist. 
• Work for an agency that supplies support staff to participants who are self-directing. 
• Work with a self-directing service to set up your own model for self-directing and engaging support staff.
• Employ support workers who are self-employed (have an ABN)
• Set-up your own service to employ your staff.  (apply for an ABN)

Another option that I have used is to engaged a number of different staff through different providers. This gives you more options and a wider pool to select your workers from.  Remember you have the right to withdraw from a service agreement, as long as you follow the terms for withdrawal in the service agreement. 

I have previously written blog posts explaining the purpose of service agreements, what they should contain and your rights. see Planning your ndis pathways.

So to find the right worker for you, you need:

1. A list of required supports.
2. How you will engage your support workers
3. Service agreement(s) or prepared employment agreements
4. A support plan
5. Job description(s)
6. Induction plan and/or staff training manuals 
7. A list of skills and qualities you are looking for in a support worker. (If you are advertising for a support worker or using a recuriment agency, include these in the advertisement)

The journey begins . . . 

Here are some tools

Things to include in your support plan

• Information about you (or the participants)- what daily life looks like, the activities you engage in, and your hobbies and interests including family members and emergency contacts.
• Information on your (or participants) disability and health conditions that will assist workers to deliver quality support.
• A skills audit - Something that clearly states where you (or the participant) can do or can't do and how support is needed. Some things I include are mobility, communication, medical summary, epilepsy support plan, emergency response plans, tasks list for in-home support, personal care plan and procedures, guidelines for community access.)
• Staff team culture
• Induction plan
• Training requirements.  

The clearer this can be, the less room for applicants to misunderstand the requirements and responsibilities of their role.  Signing and employment agreement means agreeing to follow the support plan.  My experience is staff interpret this document to suit themselves so the person responsible for coordinating supports needs to be firm.

Writing a Job Description

This will be needed if you are recruiting your own team members or placing a job on an online platform. When I began self-directing my own team I used a recruitment agency. I find there are loads of people looking for support work, particually students needing causal work. However, you want to ensure this person is a good fit for you or the participants needs and lifestyle!

Include a job title.  I intitally advertised for two postitions a Key Support Worker and a casual worker.  I found in being flexible in my recuriting I altered the job descriptions I offered to the successfully candidates.  Posting a 'job' on an online platform is a bit different as some of the screening is done for you.  Such as police and reference checks.  (Oh I never give out my address until I am sure I want this person in my home. It's find it good to meet the person in a park or library.)

I like to do my meet and greets in the community at The Retro Diner.  As I provide artwork for the diners walls.  It enbles the interested party to see the level of my artwork and veiw me in a working enviroment.

So you need to include:

• Job title
• Summary of duties
• Something about the type of person your looking for
• Any requirements such as a blue and yellow card, qualifications, 2 referees and a willingness to drive your own car. 
• I include I have a cat at work so workers with an allergy to cats are not suited to working with me.

 Something I might put on a online platform, or I even used successfully on Facebook is:

Crazy art loving cat women seeks casual support workers to complete her current support team.  To be suitable you need to be flexible with your work hours and have great availablity.  This postition will include work after 5 pm and on the weekends. 

I require assistance with housework, personal care, meal preparation, my physio program, shopping and growing my visual arts practise.  If you a crazy and love to laugh while your working; and can prove to me your loyal and reliable then message me to discuss my needs futher.  

Someone with a sense of homour or witty in important to me as I am a true larkin'. If this was a job add I be a lot more descriptived in the personal qualities I looking for.  I looking for someone who wants to get the job done and empower me to achieve my ndis goals, not take me out for coffee.  Although occasionally I like to do that to.   I have plenty of friends and I don't pay them buy the hour get me out the house. 

What is a service agreement?

Put simply it is an agreement or contract between you and the organisation or person you are engaging to provide your support. It states the specfic supports that will be provided and the costs of those supports (quote).  It outlines their responsibilites to you and your responsibilites to them for an agreed period of time.  It should also spell out the terms for seazing the agreement before the due date.

Although the agreement can be reviewed at anytime at the request of either party or termeniated imediately if either party acts concere to the terms and conditions. You do not need to have a 12 month agreement, it can be for any period of time and if you are new to recieving support I would recommend a short period between 8 to 12 weeks.