Purple Day Update!

March 26th Purple Day

. . . Is Fast approaching! Have you combed you wardrobe yet to work out you purple day artier?  It your still straching your head you could try some purple day merchandise  just follow the links to pick up your gear! Or you might also like to try Go Fundraisers Online Store.

While many organisations who support those living with seizure disorders have fundraising, Purple Day is about taking the opportunity to talk epilepsy! 

 World wide it is estimated 50 million people suffer from epilepsy. In 70% of patients seizures are controlled by surgery or medications. 2014 is and significant time for us to be talking about epilepsy as recent medical break through have be able to determine the are to broad types of seizures, the that occur in a generalized area of the brain and those that have a focal point.  This is one reason why epilepsy seizures can present so differently.

  

The presentation of seizures varies widely from person to person. Recently the way medical practioners and epilepsy educators talk about epilepsy has undergone a great deal of change.  We no longer talk about grand mal and petti mal seizures, but a generalized or focal seizure. You can read some other interesting facts here.

In the event you need to call 000 for a stranger on the street having a seizure using  the right language can be helpful in the paramedics assisting you to give assistance to the patience over the phone.

As well as research developments and changes in language, the way we assist a person having a seizure has dramatically changed, here is some essential fist aid informaton .

So I have epilepsy but epilepsy does not have me! I am one of the 30% patience whose seizures are not controllable by surgery or medication.  Just as my cerebral palsy has not prevented me form achieving a fully independent life in my community nor has epilepsy. I am assisted to live independently in my own home.

I may look brave, but I take precautions to manage my illness.  Despite my seizures not being controlled medication does provide assistance and I don't go out alone if I am feeling unwell.  Family and friends have a spare key and I have a medical alarm to call for assistance.

Purple day is a great opportunity to use my art for advocacy,. This is my 2nd annual online art auction. It's a chance to demonstrate that people with epilepsy can make valuable contribution to our community.       

50% of sales of my artwork will be donated to Epilepsy Action Australia my purple day online auction is  registered  with go fundraiser and the International Purple Day Organisers. All payments and donations can be made secure online.  Terms and conditions are available on the auction site and it is strongly recommended you resigester intention to bid before 25th March.  

All artwork and the relative information can be viewed on the site now. Please contact me if you need further information or assistance. 

Debbie