When I meet with my NDIS planner she asked what supports I needed to live a normal life? The National Disability Insurance Scheme supports people with disabilities to participate in the community. Readers of my blog know that my participation is around art and advocacy?
So what does an artists life look like besides a organised mess and half finished are works every where?
Currently I am working on a doll exhibition to examine the issues of diversity and inclusion. I also have work on exhibit at Aspire Gallery.
Normal . . . $56 one way to the PA hospital?
Normal . . . Unable to fill support shift?
Normal . . . step where my appointment is?
Normal . . . need to cancel appointment as their is no support worker and power chair can't get in.
Normal . . . I pay $75 because I can't access a building.
Trying to explain that cost of transport is not affordable. $112 to attend a medical appointment is unfair. I need to give 24 hours notice to cancel my support. A worker can call in sick and I miss an appointment.
I know life will never be fair! But these are the hurdles I face as I navigate the NDIS.
In terms of assisting with transport costs for those who are unable to catch public transport the NDIA have not got close to the actual costs of transport.
What is normal anyway?
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